Archive for October, 2010|Monthly archive page

Isolated Genomic DNA Is Not Patent-Eligible Merely Because It Is Useful Or Requires Investment To Identify

In Uncategorized on October 30, 2010 at 7:54 pm

Download this file

“Reversing a longstanding policy, the federal government said on Friday that human and other genes should not be eligible for patents because they are part of nature”

Article by Andrew Pollack,  NY Times — http://www.nytimes.com/2010/10/30/business/30drug.html?_r=3&hp

Star Trek future or Terminator future

In Uncategorized on October 30, 2010 at 1:55 am


The sound of sound @dirtdress

In Uncategorized on October 23, 2010 at 6:17 am


Personal Genome Project – Update – Accepted!

In Uncategorized on October 10, 2010 at 5:57 pm

It has been just a week short of a year since I applied for the Personal Genome Project out of Harvard. Their mission is to “better able to advance our understanding of genetic and environmental contributions to human traits and to improve our ability to diagnose, treat, and prevent illness.” I totally, whole-heartedly support this. Their aim is to get 100,000 genomes up and public for the research community and, well, the public; a counter to private companies that sell your sequences back to you for the same purpose.

Having my information out in public does not scare me. It worries me that that information could be used against someone related to me in some not so distant future. These are things I am still contemplating and still discussing with my family. Letting the world [read: insurance companies] know my conditions, illnesses, surgeries, medication history, etc. is a bit more intense than simply tweeting casual cynic about graduate school depression and poverty. The current rules and regs are not as protective as we would like. Imagine that.

Anyhow, for those interested in these issues and me as a PGP participant, a couple of interesting points in my acceptance letter:

“(2) PGP Public Profile: Now that you are enrolled in the PGP, we have created a public profile for you. The information contained in your PGP public profile will help us to prioritize the allocation of resources for tissue collection and DNA sequencing as they become available. We plan to incrementally roll out new features that will enable you to voluntarily add genomic, health, and trait data to your PGP public profile over time. One of the first features we have implemented is the ability to link your Google Health account with your PGP public profile. By linking these two accounts, information contained in your Google Health account will be added to your PGP public profile. When your Google Health account is updated with new information, your PGP public profile will be updated too. We hope you find this is a convenient way to share basic health information, like medications, allergies, and conditions. Please remember that you are not required to link your Google Health account with your PGP public profile, and that you are free to withdraw from the PGP at any time.

(3) DNA Sequencing: We want you to understand that it may take a considerable amount of time before we are able to sequence your genome. Although the cost of whole genome sequencing is dropping fast, it still costs thousands of dollars per person at the current market price. Our ability to sequence your genome will depend on our success in securing funding and sequencing services for the study. These are all things we are actively working toward, but it is difficult to predict how long it will take and there are no guarantees that we will be able to provide DNA sequencing for every individual who enrolls in the study. You should also know that we may shuffle the order of participants as we prioritize the allocation of DNA sequencing and other resources.”

I have some time yet. Money, as always, is an issue for public science. Until then, here is what a public profile looks like, complete with medication history.

You *thought* you knew sax

In Uncategorized on October 9, 2010 at 9:57 pm