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Public opinion on biobanking privacy – Trust in Academia

In Uncategorized on November 15, 2009 at 8:11 pm

kaufman 2009 public opinion about privacy in biobanking.pdf
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"Survey correspondents consistently were more worried about government researchers and agencies accessing data from the cohort study than about academic and medical researchers doing so… consistent with several other studies that observed that people are willing to share medical information with academics than with governments or with industries… implies informed-consent documents should clarify, to the extent possible, what types of researchers will have access to the data."

However:
"Privacy concerns are not strongly related to willingness to join a research study"

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